The Foundation

Rare Disease Foundation was established in February 2009.  Our goal is to change the lives of children and families affected by rare and undiagnosed diseases through social support, advocacy and treatment-focused research.  We are a dedicated team of physicians, researchers and parents who know firsthand the difficulties of raising a child with a rare disease.

On this website you will find details on Rare Disease Foundation, including our history, strategic plan and contact information.  You will also have access to information on rare diseases and support systems that we continue to refine to meet the needs of our unique community.  Another component of the website outlines previous and ongoing research projects, as well as information on applying to our Microgrant Program.

Please feel free to contact us with any comments or questions.

Working together to find solutions for children and families affected by rare disease