WHY DONATE TO THE RARE DISEASE FOUNDATION?

Simply put, your donation will be the catalyst for hope and change in the lives of rare disease patients and their families not just in Canada but globally.

As a frontline organization, we are committed to raising awareness and advocating for change, progress, resources and support. 

We are a registered Canadian non-profit organization and charity and can issue tax receipts to individuals, charities, and corporations to offset Canadian tax filings. Registered Charity #819326224RR0001.

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Rare Disease Foundation
4500 Oak Street, Room C234
Vancouver, BC V6H 3N1

Dr. Gabriella Horvath

UBC Biochemical Diseases

I've always been grateful for the support of microgrants from the Rare Disease Foundation. They gave me the possibility of attempting to practice ’Precision Medicine’ in times when this term was not yet discovered.

Dr. Saadet Andrews

University of Alberta Biochemical Diseases

“I worked with several undergraduate research students that were funded by the RDF Microgrant program. Those students were inspired to become physicians due to their involvement in those research studies. Without RDF funding support none of these studies would have been possible.”

Dr. Anna Lehman

UBC Medical Genetics

“Rare Disease Foundation microgrants were absolutely pivotal in launching my research career and improving my ability to help my patients through research.”

YOUR FUNDS WILL GO TOWARDS
  • Our COVID-19 initiative, Glowing Hearts Campaign to serve the rare disease community with essential needs (groceries, medical supplies, one on one counselling, and research specific to the rare disease population) during this pandemic.
  • Our unique microgrant program that since 2008, has funded 464 research projects resulting in treatments for 14 rare diseases.
  • Our thriving online and in person Parent 2 Parent Resource Network Community with groups across Canada.
  • Our annual fundraising events such as Rare Disease Day and Rare Finds Gala to support our community.
  • Other patient advocacy and research initiatives