Chief Executive Officer
Sanaz brings a significant track record for organizational growth, as an innovative business leader and former global executive for several multinational companies. Sanaz is also the former executive director of the Essilor Vision Foundation, a global charity providing eye wear and eye care to populations most in need. She also brings the patient perspective as a rare disease patient and parent.
Chief Medical Officer
Dr. Millan Patel
Dr. Patel obtained his undergraduate, medical and Masters in Genetics degrees at the University of Alberta and completed residency training in Medical Genetics at the Hospital for Sick Children in Toronto. He went on to study mechanisms of hormonal and circadian control of bone formation in post-doctoral research at Baylor College of Medicine in Houston, Texas. He is currently a Clinical Professor in the Department of Medical Genetics at UBC and Medical Geneticist with the Provincial Medical Genetics Program. His research focuses on finding the basis of and developing therapy for ultra rare diseases as well as the application of high throughput technologies to diagnosis. He is an RDF co-founder and was Research Director from 2008-2019.