Bring your most challenging question.
There are lots of challenges parents face navigating this journey of rare disease. This month we decided that it is a perfect opportunity to bring your tough question and hopefully the group as a whole can help with coming up with a solution, plan or game of attack. Bring in the new year with addressing some of your most plaguing issues or mountains to climb. With the group behind you, the chance that you can get to the top will be much greater and most importantly you don’t have to tackle it alone.