Events for May 28, 2019
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Welcome to our group! Please come and join us at our monthly parent meetings which will range from themed parent discussions and guest speakers. We aim to learn from each other and to find out more about caring for our special children -let's navigate the world of rare disease together. New parents always welcome.
This month: Learning From The Experts - You
This parent/caregiver led discussion will allow you to bring forward any issue, or challenge you are experiencing as a parent and/or caregiver and use the expertise of the group to help find solutions.
We will also talk about plans for a summer family gathering and chat about topics for next year!
Please join us for our final meeting before the summer break.