WE ARE LAUNCHING GLOWING HEARTS – A COVID-19 INITIATIVE TO BENEFIT AND BRING RELIEF TO OUR RARE DISEASE COMMUNITY.
The Glowing Hearts Initiative is Rare Disease Foundation’s strategic response to the COVID-19 crisis affecting our community.
The initiative is a 3-prong critical approach to meeting our community’s most pressing needs:
1. COVID-19 research specific to the needs of the rare disease community / development of a COVID-19 blood test to assess the level of cellular immunity to the novel coronavirus.
Our researchers are hard at work to develop a blood test to assess the level of cellular immune response to the novel coronavirus, with a view to understanding who is genetically susceptible to re-infection.
2. Providing food and medical supplies to our vulnerable community members.
Our team is currently exploring strategic partnerships with food and medical suppliers to provide members of the rare disease community with direct and convenient access to essential supplies without leaving their homes.
3. Providing mental health support and services through an easy to use and access virtual platform.
During the best of times, rare disease patients, families and caregivers can experience loneliness, anxiety and isolation. Therefore, it is especially important now that in this time of crisis when these feelings are heightened, that we provide our community with mental health resources to keep them resilient and feeling supported. We are creating a team of mental health professionals, experienced in dealing with crisis and trauma situations, to serve our rare disease patients online during the COVID-19 crisis.
Pledge your support to our campaign by donating here.
Glowing Hearts campaign site is currently under construction but is coming soon!
Would you like to get involved, share your thoughts or tell us about an organization in your community that could be a part of this outreach campaign?