A patient rally for a rare disease drug plan during the intergovernmental Health Ministers meeting due to the unfulfilled 2005 promise to enact a plan.
CALLING ALL RARE DISEASE PATIENT ADVOCATES
Join the Patient Rally for a Rare Disease Drug Plan during the FPT Health Ministers Meeting Jan 19-21 in Vancouver!
There is an unfulfilled 2005 promise to commit to a National Plan for Rare Disease Drugs; in 2007 there was a proposed National EDRD Program; there was NO ACTION 2008-2014 and only limited access; in 2014 a working group was established and in 2016 there will be a report to the Health Ministers.
January 19 : ECC Forum and Patient Media (Pan Pacific Hotel)
January 20-21: Patient Rally at Health Ministers Meeting (Hotel Vancouver)
More information available at firstname.lastname@example.org or by calling 1-877-302-7273
Organizer: Canadian Organization for Rare Disorders