UPDATE: The Rare Disease Foundation and it’s Chair, Isabel Jordan are profoundly moved and humbled to have won the award!!
The Canadian Organization for Rare Disorders (CORD) will be presenting 6 awards for excellence and leading work in the field of rare disorders, at its CORD Rare Disease Day Awards Dinner Gala, Wednesday, February 27, 2013, in Toronto.
The CORD “Rarities” are the first-ever Canadian awards honouring those who have made significant contributions to rare diseases in Canada.
Honourees have been nominated by the rare disease community. Here is the list of honourees and the reason for their nomination:
The nomination is in the category “To the individual or group that demonstrates outstanding citizenship and volunteerism in improving the lives of those living with rare diseases in Canada” and the reason given for the nomination was listed as “Isabel was instrumental in founding the Rare Disease Foundation. She dedicates her life to its initiatives. Providing the first ever microgrant program to directly benefit patient centred research, providing community support for families living with rare diseases via the parent to parent resource meetings, fundraising as well as expanding into new communities. Isabel and this organization has done more for me and our family than any other group. They deserve the recognition and accolades for the amazing things they do.”
To vote for any of the categories go to http://www.surveymonkey.com/s/rarityawards2013
Voting will conclude on February 4, 2013.