How We Work
Boldly connect patients, researchers and practitioners for better results all around.
Aside from our mobile app, Rare Finds, we have harnessed our desire to break down communication silos between patients, practitioners and researchers into a translational care approach to research to ensure a patient-centric treatment that incorporates all relevant data sources.
Seed-fund ($5K or less) early stage research and product development projects, designed to benefit rare disease patients and caregivers.
By jump-starting early stage research through a microgrant and empowering research champions in our translational care approach to research, we aim to reduce the traditional lengthy cycle of disease identification, research, and drug trial process. This innovative model can improve the lives of patients with rare diseases in as little as 18 months to three years. To date, researchers of 25% of microgrants awarded have gone on to receive $8.6M in bridge funding to expand their work.
Power-up researchers with low red tape so they retain full control over their team, process, and IP.
We believe in empowering researchers by providing them with the financial means to jump-start their discovery journey. All we ask of them is to provide us with a lay summary of results upon completion and to acknowledge the support of Rare Disease Foundation and BC Children’s Hospital Foundation (BCCHF) in any publications containing data supported by their microgrant work.