Join our Parent 2 Parent Resource Network Online Community!
Rare Disease Foundation aims to promote strength and hope through knowledge, resources and social support.
Our Parent 2 Parent Resource Network community is a secure online platform for parents to connect and get support from other Canadians and global citizens living with a rare disease. Free to join, this growing online community fosters cross-disease information sharing, compassionate support between caregivers of patients with a rare disease and access to multiple educational resources.
Join Now to Access:
- Online forums
- Shared resources
- Information on rare disease research progress
- Library of past webcasts & meetings
Our in-person events host round table discussions and guest speakers, many of which are webcast to the online community.
Since launching the program in 2008, there are Parent 2 Parent Resource Network groups in the following cities:
- Victoria (British Columbia)
- Vancouver (British Columbia)
- Whitehorse (Yukon)
- Toronto (Ontario)
- Montreal (Quebec)
- Cobourg (Ontario)
- St. John’s (Newfoundland and Labrador)
Do you have questions about joining or about the groups?
Please email us at email@example.com