Parent 2 Parent Resource Network

Join our Parent 2 Parent Resource Network Online Community!

Rare Disease Foundation aims to promote strength and hope through knowledge, resources and social support.

Our Parent 2 Parent Resource Network community is a secure online platform for parents to connect and get support from other Canadians and global citizens living with a rare disease. Free to join, this growing online community fosters cross-disease information sharing, compassionate support between caregivers of patients with a rare disease and access to multiple educational resources.

Join Now to Access:

  • Online forums
  • Shared resources
  • Information on rare disease research progress
  • Library of past webcasts & meetings

Our in-person events host round table discussions and guest speakers, many of which are webcast to the online community.

Since launching the program in 2008, there are Parent 2 Parent Resource Network groups in the following cities:

  • Victoria (British Columbia)
  • Vancouver (British Columbia)
  • Whitehorse (Yukon)
  • Toronto (Ontario)
  • Montreal (Quebec)
  • Cobourg (Ontario)
  • St. John’s (Newfoundland and Labrador)


Do you have questions about joining or about the groups? 

Please email us at families@rarediseasefoundation.org