Our Supporters

With Gratitude to Our Volunteers and Partners

Thank you to the individuals and partner organizations who have assisted us and continue to work with us to improve research, treatment and support services for patients with rare diseases. We are grateful for the compassion and hard work that have enabled the Rare Disease Foundation to grow and expand our services to be a voice of advocacy and resource for patients and clinical researchers worldwide.

Supporting Associations & Partner Foundations 

● B.C. Children’s Hospital Research Institute 
● The Canadian Tay Sachs and Related Disorders Organization
● UBC Rec (Lace Up for Kids event)
● Kaldor
● 123w.ca Patrons and Founding 

Patrons & Founding Volunteers 

● Neal Boerkoel 
● Ted Longstaffe 
● Angela Longstaffe 
● Tamara Taggart 
● Judy Hall 
● Barb McGillivray 
● Mehdi Kurtagich 
● Kate Paterson 
● Coleen Christie 
● Andrea Holmes 
● Lori Eisenhaur 
● Ryan Walton
● Sally Douglas 
●  Suman Bakshi 

● Debbie Bertanjoli
● Jen Orth 
● Ruby Smith 
● Judy Phan 
● Rosemarie Rupps
 Kirsten Harkins
● Marion Thomas
● JoAnne O’Connor 
● Dawn Patel 
● Christele du Souich 
● Caitlin Brenchley 
● Susan Creighton 
● Jennifer Thompson 
● Kirsten Bartels 
● Deb Babcock