Members of the Board for the Rare Disease Foundation in Canada come from all walks of life but share one important drive; a desire to advocate for patients with a rare disease diagnosis. Some of our Board Members have children who have been diagnosed with a rare disease, while others have walked the journey of being a patient with a rare condition.
Click their names to read their stories.
Dr. Millan Patel, Co-founder, Vice-Chair & Chief Medical Officer
Scientific Advisory Council
- Dr. Cornelius Boerkoel, Chair
- Dr. Barb McGillivray
- Dr. David E.C. Cole
Leadership & Personnel
Sanaz Maleki, Chief Executive Officer
Joeline Norgaard, Program Director
Tanzi Khakimova, Chief Financial Officer
Jennifer Thompson, Volunteer Coordinator
Chloe Lim, Research Program Coordinator