Board Members

Members of the Board for the Rare Disease Foundation in Canada come from all walks of life but share one important drive; a desire to advocate for patients with a rare disease diagnosis. Some of our Board Members have children who have been diagnosed with a rare disease, while others have walked the journey of being a patient with a rare condition.

Click their names to read their stories. 

Isabel Jordan, Co-founder & Board Chair

Tyler Jordan, Co-founder & Treasurer

Dr. Millan Patel, Co-founder, Vice-Chair & Chief Medical Officer 

Owen Underhill, Co-founder & Secretary of the Board

Alana Newton, Mental Health Director and Board Member

 

Scientific Advisory Council

• Dr. Cornelius Boerkoel, Chair
• Dr. Barb McGillivray
• Dr. David E.C. Cole

Leadership & Personnel

Sanaz Maleki, Chief Executive Officer

Joeline Norgaard, Project Manager 

Tanzi Khakimova, Chief Financial Officer

Jennifer Thompson, Volunteer Coordinator

Chloe Lim, Research Program Coordinator