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Read Dr. Millan Patel’s statement on clinically vulnerable populations and COVID-19 vaccine access here.
Our Story
About Us
Living with a Rare Disease
Our Team
Our Supporters
FAQs
History
Contact Us
Submit an Invoice or Expense Claim
Glowing Hearts Campaign
A COVID-19 Initiative - The Glowing Hearts Campaign
Support Programs: Food, Medical, Mental Health, Wellness
Research
Our Research Philosophy
Our Approach
Microgrant Program Application
Innovative Therapies Program
Community
Parent 2 Parent Resource Network Community
Annual Events
Event Sponsors
Event Calendar
Volunteer
Webcast Series
Resources
Living Without a Diagnosis
DONATE
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