Our History

Rare Disease Foundation's History 

2007  Rare Disease Foundation develops a Translational Care  operating model to increase the efficiency of results-based rare disease research.
2008  In February, Rare Disease Foundation becomes a registered Canadian non-profit organization.

Rare Disease Foundation hosts the Peter Wall Institute for Advanced Studies Theme Development Workshop to discuss our approach to providing much needed support for the rare disease community in Canada.

In December, Rare Disease Foundation held its first microgrant competition.
2009  Rare Disease Foundation becomes an official registered Canadian charity in 2009.
2014  Rare Disease Foundation programs expand to include our Parent2Parent Resource Networks and Microgrant program (Canada, United States, Europe & Africa).
2015 David Cox becomes Rare Disease Foundation’s inaugural Executive Director (and first staff member)
2017 Launch of first Minigrant program
2019 Sanaz Maleki is elected as CEO