Get Involved with the Rare Disease Foundation

Were you, or someone you love, diagnosed with a rare disease? The Rare Disease Foundation is driven by a passionate team of dedicated volunteers who want to make a difference in the rare disease community.

There are currently no volunteer opportunities available.

Please check back with us at a later time.

Or, if you would like to inquire about volunteering with the Rare Disease Foundation at a future time, we invite you to email us at volunteer@rarediseasefoundation.org.

If you are currently a volunteer and need to submit an expense / reimbursement claim, please click here.