Rare Disease Foundation aims to promote strength, community and resilience through knowledge, resources and social support.

Our Peer 2 Peer Resource Network community is comprised of groups across Canada that host round table discussions, guest speakers and community events.

Since launching the program in 2008, Peer 2 Peer Resource Network groups have been active in the following cities:

  • Victoria and Vancouver (British Columbia)
  • Edmonton (Alberta)
  • Whitehorse (Yukon)
  • Winnipeg (Manitoba)
  • Toronto (Ontario)
  • Montreal (Quebec)
  • St. John’s (Newfoundland and Labrador)

Most groups stopped during the pandemic so we are looking for new group leaders!  Are you a rare parent passionate about helping other parents, or a rare adolescent or senior passionate about supporting your peers?  Then our Peer 2 Peer groups are for you!  If you would like to hear more about starting or joining a group, please reach out.

Email us at info@rarediseasefoundation.org