Rare Disease Foundation aims to promote strength, community and resilience through knowledge, resources and social support of people living with a rare condition, and/or their family members/friends.
Peer support is vital within the rare community – who knows what it is like on a rare journey better than someone else on their own rare journey! Our health situations and health care paths may be different from each other, but we usually have more in common that we think. Deeply rooted in empathy of our lived realities, we show up to support each other, forming a stronger bond together.
Our Peer 2 Peer (P2P) Resource Network community brings together peers across Canada that host personal sharing groups, round table discussions, guest speakers and/or community events.
Since launching the program in 2008, P2P groups have been active locally across Canada in the following cities:
- Vancouver
- Victoria
- Edmonton
- Whitehorse
- Winnipeg
- Toronto
- Montreal
- St. John’s
To support all people impacted by rare diseases across Canada, our P2P Canada Virtual Group is open to everyone living with a rare disease, and/or their family members/friends, in Canada. This FREE online peer support group brings people together, reducing the distance and isolation between us.
The P2P Canada Virtual Group meetings are held online once a month from 4:30pm to 5:30pm PT.
To register, check our Evenbrite page for the upcoming events.
For more information about this P2P group, please email: info@rarediseasefoundation.org
We are looking for new group leaders!
Given that in-person groups stopped during the pandemic, we are currently expanding our local P2P groups. Are you living with a rare condition yourself, or are you a rare parent passionate about helping other parents?
We are actively creating peer support groups for local rare communities, as well as groups focused on specific ages and/or roles (for example, adolescent, seniors, caregivers). If you are passionate about supporting your peers, then our P2P groups are for you! If you would like to hear more about volunteering to start a group, or to join in attending a group, please reach out.
Email us at info@rarediseasefoundation.org
