Victoria, Vancouver, Calgary and Ottawa all have something in common when it comes to rare diseases: Each of those cities has for the first time, issued civic proclamations in recognition of International Rare Disease Day (February 28)! And a bonus, each of those cities have events scheduled to recognize the day. In Vancouver, the event takes place Wednesday, February 25 at the Child and Family Research Institute next to Children’s Hospital on Oak Street from 6:00 pm to 8:00 pm. Don’t miss it!
For Immediate Release
International Rare Disease Day Recognized by Increasing Number of Civic Proclamations in Canada
February 23, 2015
Vancouver – Families, caregivers, researchers and clinicians will gather February 25 to recognize International Rare Disease Day in Vancouver. City councilor Dr. Kerry Jang will launch festivities by reading a civic proclamation recognizing Rare Disease Day in Vancouver, one of just four cities across the country doing so this year. Presentations will follow by researchers and parents at the event taking place at the Child and Family Research Institute at BC Children’s Hospital. Other civic proclamations and events are being hosted in Victoria, Calgary, and Ottawa, led by local Parent2Parent resource support groups.
“Nearly three million Canadians will have a rare condition in their lifetimes,” said Dr. Millan Patel, Research Director for the Vancouver based Rare Disease Foundation. “We are coming together in cities across the country to raise awareness of the unique challenges faced by individuals and families who are living with a rare disease.” These are just a few of the awareness events in support of Rare Disease Day, recognized on the last day of February each year.
The Rare Disease Foundation raises awareness and support on behalf of families and those impacted by rare disease in Canada, and momentum is growing.
“We are really proud that this important issue is being recognized by municipal leaders across the country. They are taking progressive steps to educate citizens and make them aware of the impact of rare disease,” said Isabel Jordan, Rare Disease Foundation Board Chair. “As a parent of a child with a rare disorder, and as Chair of the Rare Disease Foundation, I am delighted that our city is issuing a civic proclamation.”
This year, proclamations will be issued in Victoria, Vancouver, Calgary and Ottawa. All of these cities are home to groups of organized, engaged families whose children live with a rare disease, and the dedicated researchers and healthcare providers working hard to provide the best care possible for them and others like them.
For more information on the Rare Disease Foundation, please contact:
David Cox, Executive Director
Rare Disease Foundation
Email – dcox.org