How information is collected
When you contact us regarding one of our programs, attend one of our events or make a donation on our website, we collect personal information, such as your name, address, phone number and/or email address, as part of the process. Your personal information will be used for the specific reasons stated below.
Why is personal information collected?
We collect such Non-personal and Personal Information for the following purposes:
- To comply with any applicable laws and regulations.
- To provide and operate our Services;
- To provide our Users with ongoing customer assistance and technical support;
- To be able to contact our Visitors and Users with general or personalized service-related notices and promotional messages;
- To create aggregated statistical data and other aggregated and/or inferred Non-personal Information, which we may use to provide and improve our services;
How site visitors’ personal information is used
The Rare Disease Foundation website allows us to offer information and services to you. Your data may be stored in databases or in general platform applications, both of which are behind a firewall. All direct payment gateways offered by the platform and used by Rare Disease Foundation adhere to the standards set by PCI-DSS as managed by the PCI Security Standards Council, a joint effort of brands like Visa, MasterCard, American Express, and Discover. PCI-DSS requirements help ensure the secure handling of credit card information by our website and its service providers.
How do we communicate with site visitors?
Rare Disease Foundation may contact you to notify you regarding your account, to provide charitable tax receipts, to troubleshoot problems with your account, to resolve a dispute, to collect fees or monies owed, to poll your opinions through surveys or questionnaires, to send updates about our programs, or as otherwise necessary to contact you to enforce our User Agreement, applicable national laws, and any agreement we may have with you. We may contact you via email, telephone, text, and postal mail.
Children’s Privacy
If we collect any personal data of children less than age 14, we will obtain parental or guardian consent. We do not knowingly collect or solicit personal data from children without appropriate consent. If we become aware we have collected data from a child without required consent, we will delete that data.
Updates to this Privacy Policy
We may update this policy from time to time. When we do, we will revise the “Effective date” at the top and post a notice on our website or via other communication channels.
Miscellaneous
Our website may contain links to third‐party websites. RDF is not responsible for their privacy practices; please review their policies.
How to find this policy
We will make this policy easily accessible (e.g. via footer link on our website).
How can you withdraw your consent?
If you have any questions or wish to:
- access, correct, obtain a copy of, or delete your personal data, to the extent allowed by law
- withdraw consent
- lodge a complaint
Please contact us at:
Email: info@rarediseasefoundation.org
Mail:
Rare Disease Foundation
C234, 4500 Oak St.
Vancouver, BC V6H 3N1
Canada
Your express consent, allowing us to contact you, will be re-requested every 3 years. Failure to provide this consent will result in our deletion of your contact information to the extent allowed by law.