Our first meeting! Come and show your support. If you are unable to attend in person please contact us by email and we will set you through our teleconferencing system.
Notre première rencontre! Venez montrer votre soutien. Si vous ne pouvez pas assister en personne, veuillez nous contacter par e-mail et nous vous contacterons via notre système de téléconférence.
The Rare Disease Foundation is comprised of parents, caregivers and clinicians who are united in their desire to change the world of rare disease care. We work together to see that more research goes into rare disease, and through our Parent to Parent Resource Networks we band together to share resources and navigate the world of rare disease care together.Find out more »