Get Involved with the

Rare Disease Foundation

Were you, or someone you love, diagnosed with a rare disease? The Rare Disease Foundation is driven by a passionate team of dedicated volunteers who want to make a difference in the rare disease community.

We are currently only looking for volunteers who are interested to start and lead a Peer2Peer Resource Network in their area; please contact us if you would like to discuss this opportunity to give back to your local rare disease community in this way.

If you have any volunteering-related questions please email us at info@rarediseasefoundation.org.