Please update your profile on the Rare Disease Foundation website
We are updating our website to provide more resources and to locate members in the same regions. Please update your profile on the website.
We need your First and Last names and Postal Code (ANA NAN) or zip code to help us to locate members.
You will also be able to identify members in your area by entering the first three characters of your Canadian postal code or your full US zip code in the global search box on the home page.
Please add additional optional information about you and your family to your profile to help us to get to know you better.