Who We Are
We are rare disease patients, caregivers, researchers, and practitioners who share the same sense of urgency and values about access to resources and research for rare disease patients and their families.
There are over 8,000 known rare diseases and many more unidentified diseases that await clinical research.
There are over 8,000 known rare diseases and many more unidentified diseases that await clinical research.
Foundation Specifics
464
Individual Research Projects Seeded
$2.1M
Generated
14
Potential Cures
$8.6M
Follow Up Funding
50
Institutions Funded
3
Continents
Our Partners in Change
