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Peer 2 Peer
Resource Network Join our free online support group. Access social support & educational resources in our community forum. |
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Research
Microgrants
Activating small amounts of money and leveraging the existing system, microgrants make a difference in the rare disease space. |
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THE POWER OF MICROGRANTS
microgrants awarded
distributed to researchers
institutions funded
Please join us for a non-partisan event in Ottawa, Ontario to recognize International Rare Disease Day on February 28. A rare disease strategy was launched in the House in 2015, yet remains unendorsed by the Canadian government(s). By recognizing Rare Disease Day, we hope to secure the necessary support to endorse this strategy as presented in 2015.See event details The Rare Disease Foundation is marking this international day of community in Vancouver on Thursday, February 28, 2019. Please join us for a fun and engaging evening to learn how our joint efforts have made a difference to the rare disease community. We’ll be learning from a few of our Microgrant recipients and hearing from...See event details CHARITY RIDE: RARE DISEASE DAY Join Mercedes and Andrew for a ride to help raise funds for Rare Disease Day. Join us in helping the RDF to create communities of patients, caregivers, health care providers, researchers, and supporters. $25/bike all proceeds to go to support Rare Disease Foundation.See event details Our monthly meetings provide a combination of peer support, networking and opportunities to listen to a variety of guest speakers. This forum is intended to be a place of support and information for families affected by a variety of rare diseases. New parents always welcome.See event detailsRare Disease Day On Parliament Hill
February 28 @ 10:30 am - 1:00 pm
Rare Disease Day Vancouver
February 28 @ 6:00 pm - 8:30 pmRide For Rare
February 28 @ 6:30 pm - 7:15 pmToronto Parent 2 Parent Resource Network
February 28 @ 7:00 pm - 9:00 pm
STORIES
It is official – Member of Parliament Elizabeth May (Saanich – Gulf Islands) and leader of Canada’s Green Party is a rare disease supporter. On Wednesday January 24th in Sidney BC, May met with 7 rare disease families to listen to their concerns. This is the second time that RDF families have consulted with May…
ANNOUNCEMENT The Rare Disease Foundation is very excited to announce that Ms. Alyson Doughty is joining our team as Fund Development and Program Officer, effective October 25, 2018. Alyson is English/French bilingual and has both for-profit and not-for-profit experience as a business owner, employee, and volunteer. Her international training and experience in public affairs, fundraising, and relationship…
Stories from RDF
Follow our blog to read about stories of resilience and hope. We publish stories from families, the researchers, and our foundation to celebrate successes, increase awareness, and provide education.
RECENTLY PUBLISHED
Creating more microgrants to increase research into under-studied diseases
Providing community support and resources for families with rare disease
Creating educational programs to increase awareness and support for rare disease
