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Peer 2 Peer
Resource Network Connect to other families with rare diseases. Access social support & educational resources in our community forum. |
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Research
Microgrants
Activating small amounts of money and leveraging the existing system, microgrants make a difference in the rare disease space. |
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THE POWER OF MICROGRANTS
microgrants awarded
distributed to researchers
institutions funded
Want create site? Find Free WordPress Themes and plugins.This Month’s Guest Speaker: Charlotte King-Harris, Counsellor Welcome to our group in Victoria B.C.! Please come and join us at our monthly parent meetings which will range from themed parent discussions, guest speakers and videoconferencing with guest speakers in Vancouver. We aim to learn from each other... Want create site? Find Free WordPress Themes and plugins.NOTICE OF ANNUAL GENERAL MEETING OF MEMBERS OF Rare Disease Foundation (the “Society”) The Board of Directors of the Society hereby gives notice that the Annual General Meeting of the Society will be held at BC Children’s Hospital, Vancouver, British Columbia, on the 11th day of October...
Victoria Area Parent 2 Parent Resource Network
October 9 @ 7:00 pm - 9:00 pm
RDF Annual General Meeting
October 11 @ 6:30 pm - 7:30 pm
STORIES
A new study focusing on the common experience of parents of children with Rare Disease has recently been released. The authors of the study, Jennifer Baumbusch, Samara Mayer and & Isabel Sloan-Yip looked at parents experiences before diagnosis as well as during care to assess current gaps in healthcare as well as support impacting these families. “Despite the…
Regina!!! Peer 2 Peer meetups are now available in your city. Volunteer Ross McCreery is the leader for this group, with a tentative start date for the end of September 2018. Another exciting thing about this group is that this will be our first group that has a focus on adults living with rare disease….
Juan Flechas is honouring his deceased brother Cristian David by competing in the Mont Tremblant IronMan. Check out his short video here!
Stories from RDF
Follow our blog to read about stories of resilience and hope. We publish stories from families, the researchers, and our foundation to celebrate successes, increase awareness, and provide education.
RECENTLY PUBLISHED
Creating more microgrants to increase research into under-studied diseases
Providing community support and resources for families with rare disease
Creating educational programs to increase awareness and support for rare disease
