GLOWING HEARTS CAMPAIGN
The emergence of COVID-19 has disrupted our society’s foundations, destabilizing our work, family and recreational culture incurring great emotional, financial and physical distress.
For the already vulnerable rare disease community, nearly 3 million people in Canada alone, the COVID-19 pandemic has presented a unique set of challenges. Social distancing, reduced access to daily living needs and regular health care services have aggravated already difficult living situations.
We envision a society where rare disease care and treatment is accessible to all.
Our mission is to transform the lives of Canadians and global citizens living with a degenerative or life-threatening rare disease by revolutionizing awareness, developing innovative cures through our research programs, and providing resources through community and clinical support channels.