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Peer 2 Peer
Resource Network Join our free online support group. Access social support & educational resources in our community forum. |
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Research
Microgrants
Activating small amounts of money and leveraging the existing system, microgrants make a difference in the rare disease space. |
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THE POWER OF MICROGRANTS
microgrants awarded
distributed to researchers
institutions funded
Please RSVP by July 20thSee event details Live Entertainment Provided by Moiren Jones Face Painting & Games See event details Rare Finds - Feast for the SensesSee event details Rare Finds - Feast for the Senses - YULSee event detailsVancouver Area Rare Disease Foundation Family Picnic & BBQ
July 28 @ 11:00 am - 3:00 pm
Victoria Area Rare Disease Family Picnic & BBQ
August 24 @ 11:00 am - 2:00 pmRare Finds – Feast for the Senses – YEG
September 14 @ 5:30 pm - 9:30 pm
Rare Finds – Feast for the Senses – YUL
September 26 @ 6:30 pm - 10:30 pm
STORIES
Do you Have a Chronic Condition/Disability or Care for Someone Who Does? The UBC Health Mentors Program is looking for Health Mentors to share their medical expertise with our healthcare students. The UBC Health Mentors Program is a 9-month volunteer program in which adult mentors and/or caregivers meet 6 times with a small team of…
When hosting their monthly meetings, the Alberta Parent 2 Parent Resource Network #AlbertaRAREFamilies continues to keep its members engaged. Recently, over twenty brave campers headed out to Ol’ Macdonald Resort to enjoy campfires, s’ mores, and train rides! It was a wonderful opportunity to meet new families, to rejuvenate, breath deep and connect. Although Mother Nature did not offer…
by Alyson Doughty I recently attended #RareDialogue2019! A huge #RareDisease conference in Toronto, hosted by the Canadian Organization for Rare Disease (CORD) & Rare Disease International (RDI). It was the largest and most significant gathering of rare disease advocates – from patients to policymakers, from gene manipulators to AI gurus, from local support groups…
Stories from RDF
Follow our blog to read about stories of resilience and hope. We publish stories from families, the researchers, and our foundation to celebrate successes, increase awareness, and provide education.
RECENTLY PUBLISHED
Creating more microgrants to increase research into under-studied diseases
Providing community support and resources for families with rare disease
Creating educational programs to increase awareness and support for rare disease
