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Who We Are

We are rare disease patients, caregivers, researchers, and practitioners who share the same sense of urgency and values about access to resources and research for rare disease patients and their families.

There are over 8,000 known rare diseases and many more unidentified diseases that await clinical research.

Foundation Specifics

464

Individual Research Projects Seeded

$2.1M

Generated

14

Potential Cures

$8.6M

Follow Up Funding

50

Institutions Funded

3

Continents

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