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Peer 2 Peer
Resource Network Join our free online support group. Access social support & educational resources in our community forum. |
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Research
Microgrants
Activating small amounts of money and leveraging the existing system, microgrants make a difference in the rare disease space. |
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THE POWER OF MICROGRANTS
microgrants awarded
distributed to researchers
institutions funded
Special Guest Speaker Dr. Shelly Weiss, pediatric neurologist, HSC, Professor, U. of T. will be joining our monthly meeting to review how children and teenagers sleep and discuss why sleep is important. She will outline the common types of sleep disorders, insomnia in infants and children, delayed sleep phase syndrome in adolescents and talk about treatment strategies for these types of sleep problems. What are your best-kept sleep secrets?See event detailsToronto Area Parent 2 Parent resource Network Meeting
October 24 @ 7:00 pm - 9:00 pm
STORIES
Rare Disease Foundation, an innovative rare disease research grantor, with a cross country network of peer to peer community groups, announces restructuring to ignite the power of rare. Vancouver, British Columbia – September 12, 2019 – Rare Disease Foundation (RDF) Board of Directors is pleased to announce the appointment of RDF Co-founder and Medical…
The Rare Disease Foundation (RDF) and the Clinical Research Support unit (CRSU) have partnered to help clinical researchers across BC Children’s launch new projects aimed at translating their research into improved patient care. Starting this summer, researchers awarded funding through the RDF- and BC Children’s Hospital Foundation-sponsored Microgrant and Innovative Therapies Programs will have access…
Following a period of substantial growth, the Rare Disease Foundation (RDF) has announced that David Cox will no longer be the Executive Director of the registered charitable organization. The announcement comes as RDF builds on success with increased awareness of their Peer2Peer and research granting programs, as well as their partnership with Outrun Rare. Mr….
Stories from RDF
Follow our blog to read about stories of resilience and hope. We publish stories from families, the researchers, and our foundation to celebrate successes, increase awareness, and provide education.
RECENTLY PUBLISHED
Creating more microgrants to increase research into under-studied diseases
Providing community support and resources for families with rare disease
Creating educational programs to increase awareness and support for rare disease
