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Peer 2 Peer
Resource Network Join our free online support group. Access social support & educational resources in our community forum. |
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Research
Microgrants
Activating small amounts of money and leveraging the existing system, microgrants make a difference in the rare disease space. |
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THE POWER OF MICROGRANTS
microgrants awarded
distributed to researchers
institutions funded
Want create site? Find Free WordPress Themes and plugins.The next Vancouver Rare Disease Foundation Parent 2 Parent Resource Network meeting will be on Wednesday November 21, 2018. We invite you to attend a special guest presentation. Salina Dewar and Myung Lee from Disability Alliance of BC Disability Alliance BC, established in 1977, is a provincial, cross-disability voice. Their mission is... Want create site? Find Free WordPress Themes and plugins. Thursday, November 22 7pm → 9pm The Fourth Thursday of every month SickKids 555 University Ave Atrium 5704 Toronto, ON Our monthly meetings provide a combination of peer support, networking and opportunities to listen to a variety of guest speakers. This forum is intended to be a...
Vancouver P2P Network
November 21 @ 7:00 am - 9:30 pmToronto P2P Network
November 22 @ 7:00 pm - 9:00 pm
STORIES
Thunderbird Arena was host to Lace Up for Family Day this past Sunday as UBC REC staff and families involved with Rare Disease Foundation got together for an afternoon of arts and crafts, games and ice skating. Most of the kids went straight for the [Nintendo] Wii,” joked Mack Irving, a member of the…
The Rare Disease Foundation is thrilled to announce her Excellency the Right Honourable Julie Payette, Governor General of Canada has honoured its organization with viceregal patronage. It is her Excellency’s goal to be a patron to groups that make exceptional contributions to Canadian society and the Rare Disease Foundation is such an organization. Executive Director…
Today marked an important day for the Montreal and its surrounding area Rare Disease Community. As a new political party takes office, the Coalition Avenire Quebec (la CAQ), several groups of like-minded individuals joined forces to have their voices heard. Major cut backs to orphan drug support policies and social services have been felt by…
Stories from RDF
Follow our blog to read about stories of resilience and hope. We publish stories from families, the researchers, and our foundation to celebrate successes, increase awareness, and provide education.
RECENTLY PUBLISHED
Creating more microgrants to increase research into under-studied diseases
Providing community support and resources for families with rare disease
Creating educational programs to increase awareness and support for rare disease
