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Peer 2 Peer
Resource Network Connect to other families with rare diseases. Access social support & educational resources in our community forum. |
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Research
Microgrants
Activating small amounts of money and leveraging the existing system, microgrants make a difference in the rare disease space. |
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THE POWER OF MICROGRANTS
microgrants awarded
distributed to researchers
institutions funded
Support Dave Proctor on his epic journey as he runs across Canada in 66 days starting June 27, 2018. His record-breaking run averaging 108 Km per day will raise awareness and research dollars for all the children, like his son Sam, who are living with a Rare Disease. It is Dave’s mission to raise much-needed research dollars for micro-grants to help families with a Rare Disease. #RareIsEverywhere #1in12 #OutRunRare2018 Annual Summer Family RDF BBQ! An opportunity for families with children with a rare disease to come together and have fun, eat some good food and listen to some great music! Want create site? Find Free WordPress Themes and plugins. Join the us as we gather as a community – patients, families, and volunteers – and celebrate the community we’ve created. Join us a the Burnaby Village Heritage Museum for a fun-filled afternoon of food, games and conversation. We have a lot to celebrate as we... Charles River is proud to host the 2nd Annual World Congress: Lessons Learned from Rare Disease and Personalized Medicine Approaches on September 17-18 at the Royal Sonesta hotel in Cambridge, MA. Join us in Cambridge or virtually with our virtual attendance pass. For more information about the conference go to www.criver.com/2ndworldcongress.
Outrun Rare 2018
June 27 - August 31
Victoria Area Summer Family Rare Disease Foundation BBQ
August 18 @ 12:00 pm - 3:00 pm
10th Annual Vancouver Area Family Picnic and BBQ
August 26 @ 11:00 am - 3:00 pm2nd Annual World Congress: Lessons Learned from Rare Disease and Personalized Medicine Approaches
September 17 @ 8:30 am - September 18 @ 4:30 pm
STORIES
Juan Flechas is honouring his deceased brother Cristian David by competing in the Mont Tremblant IronMan. Check out his short video here!
North Vancouver’s Allison Jones knows all too well the benefits of a supportive community. A mom to a four-and-a-half year old with two rare conditions, Jones is grateful to her peers, other parents of children with special needs, whom she’s come to know through her ongoing involvement with the Rare Disease Foundation’s family and patient…
DELTA, British Columbia, May 2, 2017 — On April 8th, 2017, the Rare Finds YVR: Feast for the Senses event took place. $111,000 was raised in support of the Rare Disease Foundation in its mission to help Canadians living with rare diseases. Andrew and Meg Neufeld, co-owners of the award-winning health agency, Alongside You, were in attendance. “Life is full of challenges. Help…
Stories from RDF
Follow our blog to read about stories of resilience and hope. We publish stories from families, the researchers, and our foundation to celebrate successes, increase awareness, and provide education.
RECENTLY PUBLISHED
Creating more microgrants to increase research into under-studied diseases
Providing community support and resources for families with rare disease
Creating educational programs to increase awareness and support for rare disease
