The emergence of COVID-19 has disrupted our society’s foundations, destabilizing our work, family and recreational culture incurring great emotional, financial and physical distress.
For the already vulnerable rare disease community, nearly 3 million people in Canada alone, the COVID-19 pandemic has presented a unique set of challenges. Social distancing, reduced access to daily living needs and regular health care services have aggravated already difficult living situations.
Our mission is to transform the lives of Canadians and global citizens living with a degenerative or life-threatening rare disease by revolutionizing awareness, developing innovative cures through our research programs, and providing resources through community and clinical support channels.
Let's be the change we want to see in the world of rare diseases.
