Welcome

We are rare disease patients, caregivers, researchers, and practitioners
who share the same
sense of urgency and values about access to resources and research
for rare disease patients and their families.

info@rarediseasefoundation.org

Microgrant Program
4640

individual projects
seeded

$
1.20
.2M

disbursed

500

institutions funded

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Microgrant Program Results

what we do

We deliver potential cures by providing meaningful seed-funding for R&D while supporting our rare community and their families.

RESEARCH

There are over 8,000 known rare diseases and many more unidentified diseases that await clinical research.

Resources, library

RESOURCES

We believe that peer-to-peer support brings connection, growth, efficiencies, and critical support for rare people. 

Event 2024

EVENTS

Our fun and powerful events to honour and connect with our community will resume in the future.

There are over 8,000 known rare diseases

and many more unidentified diseases that await clinical research.

A rare disease journey

By Owen Underhill
Rare Disease Parent and Former Board Chair

Little girl with a doctor
About Us

Let’s be the change we want to see in the world of rare diseases.

become a donor

(we love monthly donors)