Welcome
We are rare disease patients, caregivers, researchers, and practitioners
who share the same sense of urgency and values about access to resources and research
for rare disease patients and their families.
Microgrant Program
4640
individual projects
seeded
$
1.20
.2Mdisbursed
500
institutions funded


what we do
We deliver potential cures by providing meaningful seed-funding for R&D while supporting our rare community and their families.

RESEARCH
There are over 8,000 known rare diseases and many more unidentified diseases that await clinical research.

RESOURCES
We believe that peer-to-peer support brings connection, growth, efficiencies, and critical support for rare people.

EVENTS
Our fun and powerful events to honour and connect with our community will resume in the future.
There are over 8,000 known rare diseases
and many more unidentified diseases that await clinical research.


