SUPPORT
OUR WORK
OUR INITIATIVES
|
Peer 2 Peer
Resource Network Join our free online support group. Access social support & educational resources in our community forum. |
 |
|
Research
Microgrants
Activating small amounts of money and leveraging the existing system, microgrants make a difference in the rare disease space. |
 |
THE POWER OF MICROGRANTS
microgrants awarded
distributed to researchers
institutions funded
How to help family and friends understand? How do you discuss your child’s and family’s experiences and needs with family members, friends, and neighbours, and school-mates? Family members and friends often have questions that they are hesitant to ask, and parents are frequently reluctant to raise issues. Our discussion will address concerns that family and...See event detailsVancouver Parent 2 Parent Resource Network
February 17, 2019 @ 7:00 pm - 10:00 pm
STORIES
Many of the board members of Rare Disease Foundation play critical roles in advocacy whether it be in improved patient care, increased awareness, networking and bringing together the medical and patient communities for valuable dialogue, raising questions and seeking answers to provide efficiencies, hope and cures. Thank you to all of our board members and…
Thunderbird Arena was host to Lace Up for Family Day this past Sunday as UBC REC staff and families involved with Rare Disease Foundation got together for an afternoon of arts and crafts, games and ice skating. Most of the kids went straight for the [Nintendo] Wii,” joked Mack Irving, a member of the…
The Rare Disease Foundation is thrilled to announce her Excellency the Right Honourable Julie Payette, Governor General of Canada has honoured its organization with viceregal patronage. It is her Excellency’s goal to be a patron to groups that make exceptional contributions to Canadian society and the Rare Disease Foundation is such an organization. Executive Director…
Stories from RDF
Follow our blog to read about stories of resilience and hope. We publish stories from families, the researchers, and our foundation to celebrate successes, increase awareness, and provide education.
RECENTLY PUBLISHED
Creating more microgrants to increase research into under-studied diseases
Providing community support and resources for families with rare disease
Creating educational programs to increase awareness and support for rare disease
