BE THE CHANGE.

GLOWING HEARTS CAMPAIGN

HOW YOU CAN HELP

PATIENT RESOURCES & COMMUNITY SUPPORT

LIVING WITH A RARE DISEASE

GLOBAL PARTNERS IN INNOVATIVE RESEARCH

OUR RESEARCH PIPELINE

PATIENT LED CHANGE ADVOCACY

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We envision a society where rare disease care and treatment is accessible to all.

Our mission is to transform the lives of Canadians and global citizens living with a degenerative or life-threatening rare disease by revolutionizing awareness, developing innovative cures through our research programs, and providing resources through community and clinical support channels.

OUR PARTNERS IN CHANGE

Let's be the change we want to see in the world of rare diseases.

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