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Peer 2 Peer
Resource Network Join our free online support group. Access social support & educational resources in our community forum. |
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Research
Microgrants
Activating small amounts of money and leveraging the existing system, microgrants make a difference in the rare disease space. |
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THE POWER OF MICROGRANTS
microgrants awarded
distributed to researchers
institutions funded
The Rare Disease Foundation is comprised of parents, caregivers and clinicians who are united in their desire to change the world of rare disease care. We work together to see that more research goes into rare disease, and through our Parent to Parent Resource Networks we band together to share resources and navigate the world of rare disease care together.See event details Our monthly meetings provide a combination of peer support, networking and opportunities to listen to a variety of guest speakers. This forum is intended to be a place of support and information for families affected by a variety of rare diseases. New parents always welcome.See event details A unique event benefiting extraordinary children. Experience top chefs at a cocktail party gala event to benefit the Rare Disease Foundation. RARE COCKTAILS I CRAFT BEERS I GREAT FOOD The Rare Finds gala is designed to be a Feast for the Senses featuring music, wine wall raffle and renowned BC chefs who present their culinary...See event details This Month: Recreation Integration Victoria Recreation Integration Victoria is a combined service that represents a shared vision. Our vision is for all people with disabilities to have equal opportunities to participate in our community.See event detailsMontreal Area Parent 2 Parent Resource Network Meeting
April 24 @ 7:00 pm - 9:00 pmToronto Area Parent 2 Parent Resource Network Meeting
April 25 @ 7:00 pm - 9:00 pmRare Finds Vancouver – A Feast for the Senses
April 27 @ 6:30 pm - 10:00 pm
Victoria Area Parent 2 Parent Resource Network Meeting
May 14 @ 7:00 pm - 9:00 pm
STORIES
It is official – Dave Proctor and Outrun Rare are now part of the Rare Disease Foundation (RDF) family. The paperwork has been signed and the merger is official! Outrun Rare will become an integral part of the RDF’s brand, advocacy and fundraising efforts. RDF is thrilled to announce this partnership, and everyone involved sees…
This week, the Canadian Government published its budget for 2019 and for the first time, rare diseases is included in the budget. The Budget, that can be read here, will allocate over $1 billion towards rare diseases and changing the heath care system. More specifically, the government will create 3 key items: the Canada Drug…
MPs from four parties unite for Parliament Hill flag-raising to mark International Rare Disease Day Federal government urged by the rare disease community to implement Canada’s Rare Disease Strategy by adopting a federal Orphan Drug Regulatory Framework and by working with provinces to address gaps in patient access to rare disease treatments OTTAWA – February…
Stories from RDF
Follow our blog to read about stories of resilience and hope. We publish stories from families, the researchers, and our foundation to celebrate successes, increase awareness, and provide education.
RECENTLY PUBLISHED
Creating more microgrants to increase research into under-studied diseases
Providing community support and resources for families with rare disease
Creating educational programs to increase awareness and support for rare disease
