Why Donate to the Rare Disease Foundation?

Simply put, your donation will be the catalyst for hope and change in the lives of rare disease patients and their families not just in Canada but globally. 

As a frontline organization, we are committed to raising awareness and advocating for change, progress, resources and support.

Did you know?

  • The average time in Canada to get a diagnosis when facing a rare disease is 5 years.

  • One quarter of children with a rare disease die before their 5th birthday, meaning many do not have a diagnosis in their lifetime due to the challenges it takes to get a diagnosis.
  • Rare diseases are everywhere! 1 in 12 people (8%), nearly 3 million Canadians and over 600 million worldwide are affected.

  • Only 6% of known rare diseases have a treatment and less than 1% are curative.

Your funds will go towards:

  • Our COVID-19 initiative, Glowing Hearts Campaign to serve the rare disease community with essential needs (groceries, medical supplies, one on one counselling, and research specific to the rare disease population) during this pandemic.

  • Our unique microgrant program that since 2008, has funded more than 500 research projects resulting in treatments for 11 rare diseases.

  • Our thriving online and in person Parent 2 Parent Resource Network Community with groups across Canada

  • Our annual fundraising events such as Rare Disease Day and Rare Finds Gala to support our community

  • Other patient advocacy and research initiatives

We are a registered Canadian non-profit organization and charity.

Registered Charity #819326224RR0001



Other Ways to Donate:

Mail a cheque to: 

Rare Disease Foundation
4500 Oak Street, Room C234
Rare Disease Foundation
Vancouver, BC V6H 3N1

Buy the book “Rare is Everywhere” by children’s author Deborah Katz on Amazon.ca. Proceeds will go to the Rare Disease Foundation. 

Host a fundraising event!
Do you have a fun idea of how you would like to support the rare disease community? We would love to discuss this with you. Please email us at families@rarediseasefoundation.org.