Skip to content

Click here to DONATE to the Rare Disease Foundation

Our People

Board of Directors

Owen Underhill - Chair

Dr. Bruce Carlton - Member

Karen Rauser - Member

Scientific Advisory Council

Dr. Cornelius Boerkoel - Chair

Dr. Barb McGillivray - Member

Dr. David E.C. Cole - Member

Leadership & Personnel

Sheila Sanaz Bissonnette - Chief Executive Officer

Dr. Millan Patel - Chief Medical Officer & Research Director

Joeline Norgaard - Program Director

Tyler Lum - Fundraising Lead

Joshua Daley - Fundraising Consultant

Chloe Lim - Research Program Coordinator

Supporting Associations & Partners

B.C. Children’s Hospital Research Institute

The Canadian Tay Sachs and Related Disorders Organization

UBC Rec (Lace Up for Kids event)

Kaldor

123w.ca Patrons and Founding

Patrons & Founding Volunteers

Neal Boerkoel

Ted Longstaffe

Angela Longstaffe

Tamara Taggart

Judy Hall

Barb McGillivray

Mehdi Kurtagich

Kate Paterson

Coleen Christie

Andrea Holmes

Lori Eisenhaur

Ryan Walton

Sally Douglas

Suman Bakshi

Debbie Bertanjoli

Jen Orth

Ruby Smith

Judy Phan

Rosemarie Rupps

Kirsten Harkins

Marion Thomas

JoAnne O’Connor

Dawn Patel

Christele du Souich

Caitlin Brenchley

Susan Creighton

Jennifer Thompson

Kirsten Bartels

Deb Babcock

Close (esc)

Popup

Use this popup to embed a mailing list sign up form. Alternatively use it as a simple call to action with a link to a product or a page.

Age verification

By clicking enter you are verifying that you are old enough to consume alcohol.

Search

Main menu

Shopping Cart

Your cart is currently empty.
Shop now