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Community Care Web Series

Mental Health Education
for Rare Disease Families
Circle of Hands

Rare Disease Foundation in partnership with REACH Trauma Response Consulting is excited to announce a FREE 5-part 1-hour long mental health education series dedicated to supporting families living with a rare disease.

It is well understood that the aspect of mental health often goes undiscussed by medical practitioners when confronting a rare disease diagnosis, specifically within children, and parents supporting their child with a rare disease.

This series is designed to fill that space by understanding the needs of not just the adult caregiver(s) and child patient but all family members living with a rare disease as a holistic unit. Through an educational approach, this series is designed to empower families with the strategies and tools to nurture their mental health to cope and thrive in everyday life. Each session will be focussed on the specific needs of an age group to ensure a complete range is covered. An activity/resource sheet will be provided at the end of each session for all attendees to practice outside of the session. 

Thank you to everyone who attended our series!

You can now watch all sessions at our YouTube channel.  

Webinar  Sessions

Session 1:
April 7, 2022 at 6 pm PST
Creating Relational Bonds with your Children (Understanding Healthy Relationships)

Target Age Focus: Pre-natal - 6 years

Session 2:
April 21, 2022 at 6 pm PST

Working through Anxiety & Anxious Thoughts

Target Age Focus: 7 - 15 yrs

Session 3:
May 5, 2022 at 6 pm PST

How Rare Disease Can Impact School Learning

Target Age Focus: 10 - 18 yrs

Session 4:
May 19, 2022 at 6 pm PST

Grief & Loss As Part of Life 
(and as related to rare disease & wellness) 

Target Age Focus: All Ages
Session 5:
June 2, 2022 at 6 pm PST


Your Life Is A Story: Who's Writing Your Story?

Target Age Focus: All Ages

Session 6:
June 9, 2022 at 6 pm PST

Bonus Session: Recap / Q&A

Target Age Focus: All Ages
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