Mental Health & Wellness Program
Living with a rare disease and caring for a loved one with a rare disease is a socially isolating experience. Rare disease patients, their families and caregivers struggle with mental health issues, social isolation and financial burdens. According to a survey conducted by the Canadian Organization for Rare Disorders (CORD), almost 80% of rare disease caregivers suffer from mental health concerns as a result of their caregiving responsibilities (CORD, 2019).
During and after the current COVID-19 pandemic, we can expect a higher incidence of depression, anxiety and trauma related conditions, including Post Traumatic Stress Disorder (PTSD). The rare disease community is a vulnerable population and we anticipate they will be more acutely impacted during and after the pandemic.
The Rare Disease Foundation is preparing to support our community through this global crisis and beyond by connecting rare disease community members with mental health providers for individual online counselling sessions at a significantly reduced rate.
Emergency Food & Medical Supplies Response
Please note that as of March 8, 2021 our Gift Card Program, launched as a compassionate response to the COVID-19 pandemic will be paused for review.
During this time, we will be working on strengthening and expanding the program through partnerships with other health care organizations to ensure the program becomes a resource staple for our community.
Stay tuned to this page and our social media channels for updates!