The Rare Disease Foundation has a passion and solid track record for delivering potential cures and providing meaningful seed-funding for R&D, in addition to resources to rare disease patients and caregivers.
We differ from traditional charities that focus on common ailments by funding large-scale, multi-decade research projects with significant overhead costs that mostly support personnel and administrative salaries.
Need for Community
When it comes to programs, our philosophy is that no one is an island, and at no time does an individual feel more isolated and alone then when they are facing a rare disease or condition. We believe that tribal knowledge and peer-to-peer support brings connection, growth, efficiencies, and critical support to families in the rare disease space.
Most recently, when the COVID-19 pandemic struck, RDF pivoted towards meeting the most critical needs of the rare disease community across Canada through the Glowing Hearts Campaign.
Emergency Groceries & Medical Supplies
This program funded over 60 families across Canada with a stipend to assist with food insecurity and need for medical supplies during the pandemic.
Our Next Chapter
Building on our Canadian success, the next phase of our growth includes a formal launch in the USA to address the need for research and support benefiting 27M Americans.Our upcoming technology launch of the Rare Finds mobile app will connect and fund projects in a more seamless and collaborative way, ensuring even more impact and return on investment.