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Program Manager

Rare Disease Foundation, a non-profit organization based in Vancouver, BC seeks a keen, committed individual(s) to oversee its Mental Health & Wellness Program and day to day operations.

Responsibilities Include:

  • Oversee administrative aspects of program:
    • Process program applications (<1 per month currently)
    • Respond to applicant inquiries
    • Communicate with partners and internal stakeholders when needed
  • Respond to miscellaneous community inquiries
  • Track and pay invoices due with RDF credit card
  • Collaborate with Finance staff to process accounts payables
  • Communicate with board chair (Dr. Bruce Carleton) and chief medical officer (Dr. Millan Patel) as needed

Possible needs:

  • Donor relations: respond to any inquiries and manage donation platforms (Donorbox, Keela)
  • Update content for website as directed
  • Technically proficiency and comfort with accessing and using the Google Admin Console and MS Office. Some proficiency with Shopify, Mailchimp, Keela (CRM), and DonorBox would also be helpful.
Time required:
  • 4 hours per week on average – some weeks a bit more, some less.

About Rare Disease Foundation

Founded in 2008, the Rare Disease Foundation is a non-profit organization on a mission to find cures and treatments through its innovative patient-centric approach to research. To date, the Foundation has funded 464 individual research projects through over $2 million distributed in seed funding, resulting in 14 potential cures delivered in as short as 18 months. Rare Disease Foundation is proud to have supported over 2,000 rare disease community members through our network of support groups across Canada and in person events (pre-COVID). Since the launch of our Mental Health & Wellness Program in June 2020, as a direct response to the COVID-19 pandemic, we are honored to have continued assisting community members by delivering over 200 individual counseling sessions with mental health professionals. By connecting and serving patients, caregivers, health care providers, researchers, and supporters, we strive to improve the lives of those living with a rare disease, ultimately providing hope, and helping to build a coalition of support.

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