Microgrants™ - $3,500 CAD

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Rare or ‘orphan’ diseases include nearly 8000 disorders and affect 1 in 12. For children with rare diseases, standard medical approaches often do not meet their needs, necessitating further research. However, research precedent often does not exist for rare diseases and never exists for uncharacterized diseases. Thus, the traditional research funding paradigm, which requires precedent and evidence of prior funding in an area of expertise, is unsuitable to fund research into rare or uncharacterized diseases.

The Rare Disease Foundation has recognized this problem and identified a new model for improving care of patients with rare disorders. For patients with rare conditions, research IS care. To this end, the Rare Disease Foundation, in collaboration with our partner BCCHF, provides microgrants to expedite exploration of new ideas for understanding rare diseases and improving patient care. Click here to see summaries and videos about our funded projects. Awards of up to CAD$5,000 are available, one investigator may apply for multiple awards and awards are in effect for 1 year from project start date. Please ask only for what you need as our funds are limited. Travel expenses to conferences, publication costs and investigator salaries will not be covered but technical services, salaries for personnel, reagents, etc. will be. No overhead is paid with a microgrant.

PROJECT CRITERIA:

  • involve a rare disease or rare sub-type of disease (lifetime prevalence < 1 in 2000)
  • directly impact patient care for one or more patients
  • be scientifically valid and feasible
  • have ethics approval (microgrant activation requires an ethics approval certificate, where applicable)

APPLICATION REQUIREMENTS:

Applications may be submitted by anyone as long as they have a collaborator to receive funds who is associated with a Canadian institution or a Registered Institution listed here. Research proposals are about 1 page in length, must indicate how this study will improve care, include a scientific summary containing background, hypothesis, methods and brief budget justification sections, and include a lay summary addressing a non-medical, non-scientific audience. Proposals are due at the end of April, July and October each year.  Decision letters will be emailed within 21 business days.

Applications will be de-identified and reviewed by multiple scientific and parent/patient (lay) reviewers for their impact on care, scientific validity and for their adherence to the priorities of patients and their families. Successful applicants are expected to provide a 1 paragraph lay summary describing their results upon project completion and describe how their work improved patient care. Funded projects are expected to lead to dissemination of results through publication or meeting presentation, and/or generate preliminary data for larger studies directed at improving patient care. If funding is readily available elsewhere, the rationale for requesting it from this program should be provided. We request that publications containing data supported by microgrants acknowledge the support of the Rare Disease Foundation and BC Children’s Hospital Foundation. We love to receive feedback on the longer term impact of the work we fund so please reach out and let us know if something awesome happens down the road with your project.

For program inquiries please contact the program coordinator, Ms. Chloe Lim at: research at rarediseasefoundation.org or the Research Director, Dr. Millan Patel at: mpatel at cw.bc.ca. For website submission difficulties, please contact our web maestro: Sohail at rarediseasefoundation.org

 

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ABOUT US

Our Vision
The Rare Disease Foundation works to revolutionize awareness and research resources through grants, community and clinical supports to facilitate improved patient care. Working closely with global clinicians specialized in rare diseases, families and patients, we ‘connect the dots’ to escalate new treatments and cures for rare diseases.

Our Mission

We are helping to transform the lives of Canadian and global citizens living with degenerative or life-threatening rare disease. We enhance communication between researchers, while keeping patients and families informed of encouraging new developments and treatments.

Our Values

We are inspired by the resiliency and determination of the rare disease community. We will serve and support the rare disease community in as many ways as possible
We listen to the needs of the community and amplify the voices of those affected by rare conditions.
We are agile and efficient but also innovative and transformative, much like the community we serve.

Through our Research Focused Initiatives program, the Rare Disease Foundation of Canada has developed a Microgrant Program. This functions as a kickstarter to provide much needed resources for analysis and research of rare diseases worldwide. We help facilitate grants to leading researchers devoted to finding a cure, and improving medical treatment for patients diagnosed with a rare disease.

The Parent2Parent Resource Network provides a secure communication platform for parents and patients to access information and rare disease research progress. The growing online community allows for cross-disease information sharing, mentoring and compassionate support between caregivers of patients with a rare disease. This helps coordinate the community voice, access educational resources and promotes strength and hope through advocacy and social supports.

Registered Canadian Charity #
819326224RR0001

VISIT OUR STORE DIRECTLY AT

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OPEN HOURS :

Mon - Friday: 8AM - 6PM
Saturday: 9AM - 6PM
Sunday: 9AM - 5PM

Phone: +1 123 456 789
Add: 5th Ave, New York, NY 10022, USA

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